Friday 20/09/2019, 10.30 – 11.45
5.3 eHealth and Rare Diseases (EJP RD)
Sala:
Język:
PL/EN
Topics:
This session will concentrate on implementation of e-health solutions for rare diseases patients. We will talk in particular about selected good practices identified by European Joint Programme on Rare Diseases.
Speakers:
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Günter Schreier
Center for Health and Bioresources, Austrian Institute of Technology,
President of Austrian Society of Biomedical Engineering -
Naside Mangir
Sheffield Teaching Hospitals,
eUROGEN – European Reference Network -
Krystyna Chrzanowska
Head of the Department of Medical Genetics at the Children’s Memorial Heath Institute (CMHI) in Warsaw, Poland.
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Dorota Korycińska
President of Neurofibromatosis Association Poland
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Tomasz Stefaniak
Dyrektor ds. lecznictwa Uniwersyteckiego Centrum Klinicznego w Gdańsku
